Yet another whirlwind trip to Philly has come to an end. It was a much better trip and we were busy the entire time. We were able to stay at the Ronald McDonald House and that was wonderful. For the few hours each day we were actually there, Jamison actually was able to play and they were so generous. It was definitely much better than staying at a hotel even though we had to follow rules, best part for me they had HIGHCHAIRS!! lol Feeding this child while he is on the go is not a fun task.
We received excellent news when we were there. After Jamison's EUA was finished we met with Dr. Shields to find out the current condition of his eyes. Originally he had one large tumor in each eye, about the size of a pea, and in his left eye he had fluid in the white of his eye along with seeds, small tumors, growing. As of Dec. 15th, the fluid and seeds in his left eye are gone and the large tumors have decreased to about half the size they originally were. They did do thermotherapy on his eyes, to help shrink the tumors further. He will have scaring in his eyes from the tumors so we don't know to what extend that will inhibit his vision. His right eye is going to be his stronger eye as it currently is anyway. That was definitely wonderful to hear, I hope he continues having a great response to chemo. After his EUA we went over to CHOP where they didn't have us scheduled so we had to be squeezed in and then he had his chemo. It was much easier with the port. The nurses just had to stick him once and that was that. He slept for the most part on Wednesday from the anesthesia and was pretty out of it. Thursday he went back for more chemo, my cousin Madeline who now lives in AZ happened to be in Delaware for business and she was flying out of Philly so she stopped by. We had a nice visit and she got to meet Jamison. When we got back to the Ronald McDonald House, a diabetic friend of mine, Robin, drove down with her boyfriend and brought us dinner. They brought baked ziti and after every bite, Jamison would say, "mmmmmm." He loves pasta so that was the perfect meal for him. :) We had a nice visit with them as well. Of course the snow put a damper on it. They were driving from New York and got stuck in traffic because of the dusting of snow we received in Philly that day. (I have to add that I did find it amusing to watch people walking fall down.) Friday we were back at CHOP for his shot and the off to the airport for our trip home.
He did really well, Jeff was in row 6 and I was in row 21 so that really sucked. But Jamison just slept on me the entire time and once we landed in Charlotte we were off to see another friend, Shannon. She brought us a ton of wintery clothes for Jamison that her son had outgrown. Somehow Cole skipped over winter in 18 month stuff and didn't have a lot in 24 month either. So we certainly appreciate that.
Now that it's a week later...I wasn't terribly impressed with Jamison's CBC yesterday, some of his counts were already on the low side and I got a phone call today asking me to take him up on Monday to get his levels rechecked. I had to take both boys to the pediatrician today after a terribly long night of whining and crying. Cole still has an ear infection in his left ear, and Jamison now has a double ear infection all on top of the congestion and coughs. So now they're both on strong antibiotics. I'm so relieved they're letting him be treated out-patient, I was a little worried they would make him be admitted to the hospital for Christmas which would have postponed Christmas because Cole wouldn't have been able to visit because he's sick. But that's all forgotten now as long as Jamison doesn't spike a fever.
Well, Happy Holidays and a very Merry Christmas to everyone. I hope everyone shares this special time with their loved ones and gives their children extra kisses. Much love to all!
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