Thursday, December 2, 2010

Small update

There isn't too much to update right now.  We're still waiting on his port, his platelet count was only 25K, normal is 150K-400K, so that's so low that he could actually start spontaneously bleeding.  Of course he just started the head banging phase and now is covered in bruises if you see the pictures from banging his head, falling, getting tripped by Cole and just walking into things.  He should be in his lowest point and his platelets are hopefully regenerating.  CHOP was actually surprised they didn't do a transfusion down here because the lowest they let them get is 50K.  I have some things to look out for in case his levels are actually getting lower and not improving so we'll be watching him like crazy.  I take him back Tuesday for another CBC and hopefully we'll have better news, the rest of his results were fine.  After his CBC we'll head over to talk to the surgeon about his port.  If his platelets are still low they should give him a transfusion so they can do the surgery and he will have time to heal before his EUA (exam under anesthesia) and chemo on the 15th.

1 comment:

  1. I worked with Johnny at DSS for years and he has asked me to keep your family in my thoughts and prayers. And I do daily. Just wanted to tell you of something that helped me through a difficult time several years ago when I was facing a similar situation with my mother. I had small children at the time but used to wake early each day and sit in the dark and quiet and pray. Then I would open up my mind in the quiet--during those times I truly believe God spoke to me when thoughts came into my mind--I believe it was God's way of speaking to me. And that helped me in so many ways. I suggest that you try sitting in the dark and quiet for a few minutes and listen to God--he will provide all that you need at this most trying time in your family's lives.

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