We're getting prepared to head to Philly again. We leave on Tuesday, so hopefully the storm will be a bit more mild than they are predicting and we will have no issues with flying. Jamison has been exceptionally cranky this month, Cole as well. They had ear infections and a nasty cold after we got back from his second treatment and neither has slept well since.
It could also be from the excitement of Christmas, which they had a wonderful Christmas. We are blessed by everyone who has cared for them and those who sent gifts. Cole enjoyed opening every single present under the tree and Jamison was content to sit on them and play with them after Cole opened them. They made a good team for Christmas morning. :) It was a quiet Christmas for us, no traveling, family visiting on different days, definitely not what we're used to. But we don't want to travel right now since we have to travel once a month.
Jamison's blood work this month was nerve-wracking again with his platelets. They bottomed out at 22K, but a transplant won't happen unless he's symptomatic or below 20K. They rebounded nicely to about 300K last week, but the week when they're low I have to keep an eye on him and make sure he doesn't hit his head as he's at risk for brain bleeds.
I took Cole to the ophthalmologist who diagnosed Jamison last Wednesday. We are happy to report that his eyes are CLEAR, no sign of cancer for him. :) While it would have been extremely unlikely for him to have RB, we still wanted to get him checked out to be on the safe side. Dr. Cheeseman wants to see him back in 6 months for another check and then he won't have to go back. It was a huge relief, but I was so nervous because I don't know how I would have handled it.
I took Jamison for his physical which he has to have every month before he goes under and I received a copy of a letter that Dr. Cheeseman had mentioned at Cole's appointment. We're a little annoyed that they didn't tell us this, and that will be brought up to Dr. Shields and her staff on Wednesday. Jamison's good eye, his right eye, has a cavitary tumor. It's less malignant and less aggressive, which is good, however, it's also less responsive to chemo. It might not shrink as we would have hoped and it's an unusual type of tumor. It is also less likely to come back, so it's a good and bad thing. Jamison seems to see fine out of his right eye, so hopefully that will remain and we won't have to worry about it.
Anyway, we hope everyone had a wonderful Christmas and New Years. We will update if there is time in Philly, but honestly we're so busy up there, it might not be until we return home. Please pray for excellent news!
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