We leave tomorrow for Philly. I'm so anxious about this trip. I can't believe a month has already passed and yet it seems like it will take forever for April to arrive. Jamison has an EUA on Wednesday and then we'll take him to CHOP for his second round of chemo. After his EUA we should be given some indication of how the tumors are responding to the chemo, so please say an extra prayer for him on Wednesday.
He's been wonderful the last two weeks, running around and playing acting like normal and eating like crazy. Even the day after he had surgery, you would have never known he had surgery just by looking at him. He was being silly and being a one year old.
Today I took him for his physical and his 15 month check up even though he won't be 15 months until the 17th. He is down to 27 lbs, from 28.5 last month. Fortunately he does have the weight to lose if he must. His hair is really thinning out, but not completely gone yet. It actually stopped falling out so we figure about a week after chemo this time he'll probably lose the rest.
I took Coley to Grandma's and Grandpa's, well, we met in Simpsonville, but he went there yesterday. He was very excited to go back there. He gave Jamison a kiss before we left and I thought that was super sweet. He's such a good big brother when he's not pushing Jamison around. :)
We should have arrangements made for where we're staying this time. We're either staying at the Ronald McDonald House, or we're staying with a family through Hosts for Hospitals. We're taking Jamison to a little party at the RMH tomorrow night, even if we can't stay with them. If we're staying with the family, they're actually going to be out of town until about 9 and the RMH said we could hang out there until the family arrives. We just have to wait until tomorrow morning to confirm which one we're actually doing.
Please wish us luck, and pray for our sweet Jamison.
My thoughts and prayers are with you and your family Jayme...Keep strong and give an extra hug to Jamison for me...
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