Jamison had his port put in yesterday and everything went really well. Okay, first let me vent. His surgery was scheduled for 10:30, meaning we needed to be there at 8:30, he couldn't eat after midnight and could nurse up until 4:30. Fortunately he woke up at 2:30 and nursed, then again at 4, so he finished nursing right on time at about 4:30. I know that surgeries tend to run a little late, I understand things happen. However he did not go in to surgery until 2:40. His surgery started over 4 hours late and there were only 2 surgeries ahead of him. He missed the cut off for peds recovery and had to go into the adult room. He was so grouchy until I got him to sleep around 12:30 because he was absolutely starving. I just think that is cruel to do to a young toddler.
Anyway, his port is now in and he's doing wonderfully. As soon as we got home last night he was running around playing, eating like a mad man to make up for those missed meals. He is such a sweet goofy little boy. I really think and hope this port will make this a tiny bit easier on him. I know none of this is easy on him, but this will at least allow him a few less needle sticks.
Our next step is heading to Philly on Tuesday. He has an EUA on Wednesday and then chemo Wednesday and Thursday. I'm so nervous about the EUA because we should get some insight as to if the tumors are responding to chemo, so please say an extra prayer for him on Wednesday.
You will find the port will make everything easier. Saying prayers for Jamison.
ReplyDelete