Now that I can actually sit down and think, today was actually kind of sad. Cole had his first clinic day. You might think, oh what's the big deal. Well, for 6 months Cole would go to the clinic and play the entire time we were there. He would have a blast. Today, however, Jamison got to play and Cole had to get him BP, Temp and blood drawn. It wasn't a horrible time for him, however as with anything lately he fought that blood draw harder than anything. He is so strong. We had both of the lab techs in there, one holding his legs between hers and holding his arm down. They first attempted a finger stick, but he was fighting that so much that they had to use his arm. So there I am, holding him in my lap, holding his one arm down, he is screaming at the top of his lungs, crying so hard and we're all just manhandling him to get a tiny amount of blood. Heartbreaking! His labs were good, though, so we go back in a week. I spoke with the doctor about his bactrim, and he said with the amount of chemo he's getting, it could be argued that he doesn't even need it, so as long as we're attempting, he's fine with that. He also sent us to the store to get something to try and help Cole with his BM's. It's been almost 2 weeks, miralax has not helped at all, we can't do enemas, so we're going to try this...assuming he will drink it. I also spoke with the social worker and got a ton of new forms to fill out. Oh joy.
I think Jamison had a fun time. The nurses all kept going to him instead of Cole, thinking we were there for him. No one could believe we were back with another child. But we were..and we'll keep going back, at least for 6 months. Then I can hope we never step foot back in those doors again, right?
I hope you guys never have to go there again---but I am thankful that you have such a wonderful place to go that will cure your sweet boys!!!
ReplyDeleteThanks. It would be easier if we were close to where they are treated in Philly. Or should I say it would be easier if there were a place to treat them locally. The Hemonc clinic does what they need to, but we don't really have a relationship with the people there like we do in Philly even though we only see those nurses once a month.
ReplyDeleteI always say a prayer for your family everyday--and my daughter, who has 2 boys, ages 2 1/2 and 15 months, keeps up with your family too and prays for you. I worked with your uncle Johnny for 25+ years--I know they have been instrumental in helping--he keeps us informed--there are lots of people out here praying for your family--I believe prayer works...Not only do I pray for your boys, but also for strength for you and your husband--it will bet better...
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