I still cannot believe we're headed back to Philly on a monthly basis. I purchased our tickets tonight for next month. Let's hope we can get NCCS to help us soon, I should know more about what we need to do with reapplying for another child when we go to the hospital on Thursday for Cole's first CBC. I'll meet with our phenomenal social worker again and see what we need to do. Although I do know we're her first case in which more than one child in a family has cancer, so this will all be new to her as well.
We'll fly out on Oct. 10 because tickets were considerably cheaper to fly out on a Monday vs. a Tuesday...to the tune of $900 cheaper. So we'll just get a hotel room, hopefully just for the one night. Right now we're thinking we'll take the boys to the Please Touch Museum again. They really seemed to enjoy themselves there and really did not want to leave. It was quiet since school was in session and it was a weekday. RMH can likely get us in for free, so that's a bonus. Free fun in Philly, you can't find that too often.
Cole is still doing well. He's still a bit hyped up, but he is also really constipated and won't take his medicine. He's is difficult. With a one year old we would just give him his medicine and rarely did he spit it out. With a three year old we have to hold him down and still get the medicine spit back at us. Another question for Thursday, is there an another way we can give Cole his bactrim, tylenol with codeine and zofran because liquid is not working. Who knows what tomorrow will bring.
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