Appointments are set

Cole's and Jamison's appointments are set for the most part.  We're still waiting to hear from Palmetto Health, our local hospital, about Cole's MRI.  I probably spent about 90 minutes on the phone this morning trying to arrange everything and of course change everything.  Jamison's birthday is Sept. 17, so we can't go after that or he won't have a free flight.  I really didn't  want to go on the 13th, and while it was an option, I just didn't want to do it that close to his birthday.  August 29, Cole will have his new patient appointment at 6:45am (yay!!).  The early appointment is a good thing.  Jamison's first appointment was at 10:00am and he wasn't seen until 3:00pm. Then Aug 30, Jamison will have his MRI and his appointment with the oncologists Nurse Practitioner because the oncologist won't be there that week.  Boo for that, but it is what works best for us.  Then Aug 31 Jamison will have his EUA, we won't know for certain if Cole will have one or not until that Monday. My assumption is he likely will have at least one, but it's all up to Dr. Shields.  I hate to put them through this and wish I didn't, but I know I'm doing what is best for them and trying to protect them.

This will make for an interesting trip as we have never taken Cole to Philly, we're not sure how he will be on the plane, nor how he will do playing the waiting games we play up there.  Hopefully we'll be able to get into the Ronald McDonald House and at least he will be able to play.  If not we'll just have to find some fun stuff to do.  Any suggestions for a 3 year old on an airplane?  Jamison usually sleeps, but who knows what Cole will want to do.

We're going to be waiting another 2 weeks for Jamison's glasses, apparently they were made wrong and now we're basically told, too bad, you just have to wait longer.