Cole had a double ear infection diagnosed on Monday after we got home. He got a really runny nose and congestion, I'm sure due to allergies while we were gone. Monday around noon he just started screaming. I called Jeff and asked him to come home because Jamison had been crying all morning, Cole was whining because he wasn't feeling well and wanted attention since we had been gone for the week and frankly I just couldn't handle it. I called the pediatrician's office at 1, they got him in at 3. As soon as he started screaming I knew it was an ear infection, I asked if his ear hurt and he said it did. He refused to take any medicine, though. When we got home he was a different child, he took his medicine and was happy pretty much immediately.
Shortly after, on Friday, Jamison started having an allergic reaction to his septra. It's an antibiotic that he takes to help protect him from a certain type of pneumonia. It started as a few bumps on his belly, spread all over, turned to hives, then to target dots. He had EN again. We ended up having to take him to the hospital on Sunday morning because it was spreading around his eyes and mouth and he was starting to itch like crazy. He was admitted and released on Monday after having a new inhaled antibiotic, pentamidine. That night in the hospital was misery. He was up every 10-15 minutes screaming in agony until about 4 in the morning and then up for good at 7. This mommy was exhausted. He had a similar reaction to amoxicillin but it was before he was diagnosed with cancer and while we were at the doctor pretty much every day he had it, it wasn't nearly as concerning as this time. Jamison also didn't start eating any food until 2 weeks post chemo this month. He just wanted to nurse all day, every day. He ended up losing 3 1/2 lbs, so hopefully we'll find out Friday if he gained any of that weight back. While he is eating now, he's mostly picking and throwing most of it on the floor.
It has been an extremely LONG two weeks. He had a platelet transfusion on Thursday and his mood really seemed to pick up. His platelets dropped to 10K, in Feb, they dropped to 9K, and Jan. 11K, so this is his third month of platelets. But now he is running around being so giggly and laughing all day long. It's great to see him and Cole so happy. I just wish we could keep them like that.
April's appointments are going to be difficult. He will have an MRI on Tuesday, EUA on Wednesday, chemo on Wednesday and Thursday, neulasta on Friday and then we'll fly home. Please continue to pray for great news and wonderful results. Also please pray that Cole has a smooth transition this month.
If all goes well at this appointment we should have May off, which is great because Cole's birthday is May 26, and we will go back in June. But we have to wait and find out for sure.
Thank you again for thinking of us and praying for us.
Shortly after, on Friday, Jamison started having an allergic reaction to his septra. It's an antibiotic that he takes to help protect him from a certain type of pneumonia. It started as a few bumps on his belly, spread all over, turned to hives, then to target dots. He had EN again. We ended up having to take him to the hospital on Sunday morning because it was spreading around his eyes and mouth and he was starting to itch like crazy. He was admitted and released on Monday after having a new inhaled antibiotic, pentamidine. That night in the hospital was misery. He was up every 10-15 minutes screaming in agony until about 4 in the morning and then up for good at 7. This mommy was exhausted. He had a similar reaction to amoxicillin but it was before he was diagnosed with cancer and while we were at the doctor pretty much every day he had it, it wasn't nearly as concerning as this time. Jamison also didn't start eating any food until 2 weeks post chemo this month. He just wanted to nurse all day, every day. He ended up losing 3 1/2 lbs, so hopefully we'll find out Friday if he gained any of that weight back. While he is eating now, he's mostly picking and throwing most of it on the floor.
It has been an extremely LONG two weeks. He had a platelet transfusion on Thursday and his mood really seemed to pick up. His platelets dropped to 10K, in Feb, they dropped to 9K, and Jan. 11K, so this is his third month of platelets. But now he is running around being so giggly and laughing all day long. It's great to see him and Cole so happy. I just wish we could keep them like that.
April's appointments are going to be difficult. He will have an MRI on Tuesday, EUA on Wednesday, chemo on Wednesday and Thursday, neulasta on Friday and then we'll fly home. Please continue to pray for great news and wonderful results. Also please pray that Cole has a smooth transition this month.
If all goes well at this appointment we should have May off, which is great because Cole's birthday is May 26, and we will go back in June. But we have to wait and find out for sure.
Thank you again for thinking of us and praying for us.
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